Dr. Schnapper, karen's local neurologist, has been brought into the loop when we had to go to the ER last saturday. So, Duke has been in contact with him to get karen some local help with our issues.
First, about 2 weeks ago karen just started or stopped eating, and drinking very little. at first it was not that bad but it got worse up till she fell out saturday. at that point she became so weak that it is hard for me, or Sarah to even get her a step away to a portable restroom. sarah had to take her to Dr. Schnapper's and that was a very hard ordeal getting her in and out of the car. it was clear we needed some kind of help.
throughout the week as i emailed duke and talked to dr schnapper, we found out that karen all of the sudden had a high liver count in one of her blood work ups. duke stopped the chemo on thursday and will not start it back until the liver count is normal.
in the mean time i have been so worried about how weak karen had been getting (which i was convinced was from the lack of food or liquids) that i was ready to try and get her admitted into the hospital to try and get fluids in her and her strenght up. apparently you just can't get people admitted and it takes more than i would have ever thought to get it done. a little good news came today with out announcement.
i knew that dr schnapper had been talking to duke and trying to coordinate local help for us but i was not sure what they were working on. today a nurse from the group "Visiting Nurse Health System" came to the house to assess karen and our needs and told us that once a week they would be arriving to the house to do karen's blood work and therapy. this means karen's mom will not have to transport her to do these things which might have been near impossible for just her. i had some helpers set up to help her but this will be sooooo much better. there will still be a need to get karen to and MRI at least once a month but i know i can get lynette help for that day.
so , the other good news is that karen vital signs are all great.
the bad news is if the liver thing doesn't get corrected it may hurt this clinical trail and we may have to go in a new direction.
hopefully we can get her stregnth up and get the echemo back on track
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