treatment news

today we found out that there are not any clinical trials open right now (i am not sure if they meant anywhere or i think it just meant at emory). so, karens only option at emory is to go with the Avastin. just to remind anyone who is reading. Avastin is the only FDA approved drug for brain tumors. it has what they call a 40% success rate in those who use it. she will go for 3 treatments starting next monday and one every other monday for 2 more. then she will have an MRI to see if it is working. this is not a cure but a control of the tumor. as long as the tumor is not growing it is working. what does this really mean. as far as i have read and what i get from the doctors that translate into my mind, is that this is something that may work for many years to come, but in a reality will only work for 1 or 2 years. so, in the mean time i am looking hard at other treatments that may be out there or clinical trials that may be about to open. i am thankful for the Avastin (even 2 years ago there was not even this), but my family wants and prays for more. so we are praying that the avastin can be a long term answer that gets us to better treatments.

if there is something you don't understand, don't be afraid to ask...others may have the same question. if there is something you NEED me to know, let me know ASAP.

thanks for all the prayers and if you talk to lynette tell her how good she is doing, but don't tell her i said anything.