proud of her not of me

i was very nervous going into this trip to duke for alot of reasons but one main reason was the use of bathrooms on the way up there. when you are driving 6 to 9 hours there are going to be bathroom breaks, and i could not guarantee single restrooms where i could go in and help her...she would have to walk in herself and get everything done. i was always worried that the floors may be slick or the safety bars for handicapped access are on the wrong side, or some other problem would occur where she might get hurt in the process. well, i was very proud of her and how well she did. not one problem really to speak of. i am also reassured to the kindness of people in the world. in this day and age where people can be so nasty, we did not run into any nasty people but people who were very helpful.

on the other side of the coin i have been noticing over the last 3 months that i am not very good at my role in all this.

now the particulars about her treatments to start next wednesday. she is going to do the drugs from the last post. she will take them everyday. every 28 days we will travel to duke for a two day workup to check her progress. the pills will be mailed to us and she will have to do local blood lab work weekly and those results will be sent to duke. if the drugs do their job and control the tumor she could be on them for up to a year, but no longer (we were told that no chemo is every really given more than a year). both of these drugs are FDA approved for other types of Cancers, but this trial is to see how they work together, and on brain cancer. they have shown great things in the past, and seem to have been doing good in this trial so far.

last thing, i don't post some information that i am not sure if people want to hear about. things that you might be wondering about. if you have specific questions please ask, or if you want to hear more about other stuff, please ask.